My sister finally got to move back into town, we are so excited to have her back now its car,job and apartment hunting time. She got to spend the night Friday I thought I would never get to hold Connor again she hadn't seen him since New Year's and was very excited to see him to say the least.
Then this weekend was my first full weekend back to work, I have changed to part time but my boss let me have a short week my first week back then I got called off due to low census the next week so last weekend was my first full weekend. It was harder than I thought it would be the extra shift made such a difference.
Monday we had thanksgiving dinner with my parents, they had purchased a Turkey for dinner last year but didn't do Thanksgiving then decided they would use it Christmas but Connor was in the hospital and my stepbrother didn't get to come home either. With him being here and my sister just moving and Connor finally being more mobile we had a small dinner on monday. It was nice.
Then that night we had our first pump malfunction. It didn't stop infusing when his food ran out it just continued to infuse air. If our selected dose is ever less than what is in the bag it is supposed to stop infusing and alarm if there is no food. It didn't poor guy had an upset tummy too. I decompressed his stomach using a bolus tube and syringe something one of the nurses had verbally explained as a just in case. I have done this with adult patients at work before. I also gave him some gas drops and he seemed to do fine. But when we called our home care supplier they did not have the Entralite Infinity Orange pump like we use in the warehouse all they had was the regular Entralite Infinity (blue pump). Well the Lactation nurse had told us that the Orange was the only pump that would work with human milk but we were doubtful the only difference was one button and we were using the same bags as the blue pump anyway. When we started the blue pump up it kept alarming "no food" apparently it wasn't recognzing the milk. So we had to do formula instead. Luckily we have been supplementing his daily oral feeds with formula anyways so his tummy is used to some formula just not this much. They said it would be 1 week before they could get another Infinity Orange pump in so until then we are doing human milk during the day and formula by night. At least I will get my frozen supply back up.
We are running out of the Mepilex sheets that the hospital provided us with to use under his button. His leaks since we aren't able to inflate the balloon completely due to his smaller stomach size. I looked online and that stuff is crazy expensive so I am now looking for alternative dressings. I have seen some cute fabric type ones that I am pretty insterested in maybe my creative side can help who knows?
Now for stitchy stuff.
I have made more progress on Starry night I really need to upload some photos..and I finally finished Connor's Birth Announcement. I have been working on a bookmark for a coworker she sketches and has made many pictures for me she loves reading so I thought I would return the favor.
Also the lady I am now working with "used" to stitch so I am trying to get her back into the addition so I have someone to talk to about stitching and we can swap stash :P keeping my fingers crossed!!




